On the Waiting List with Terri – Day 349

Donate Life Oklahoma

Terri is a liver recipient who is experiencing rejection and gradual failure of the transplanted liver she received more than 21 years ago. She went back on the transplant waiting list February 17, 2012, and has been bravely sharing her journey on the transplant waiting list; what is it like, her decline in health, her fears.  She is doing so to make people understand the importance of becoming an organ donor.   Here is Terri’s latest update:

Pneumonia…

It took 4 trips to the emergency room last week before they figured out I had pneumonia. There was some coughing and labored breathing â€" plus I had a fever. I was surprised that they sent me home from the hospital after my previous stay â€" with a fever and no antibiotic. Now I have an antibiotic.

Mom arrived on Saturday to help take care of me and run the house. We’re so lucky to have her. I’ve been using the nebulizer for my breathing, but I just can’t take the percussion vest.

My appetite has been OK, and I’ve been able to eat. But my belly has swollen again with excess fluid (ascites) and really hurts. I’m not taking the Lasix as long as I feel this bad, I can’t afford to get dehydrated. It’s been a very miserable few days. I feel like I’ve been hit by a truck. It hurts everywhere.

I got my labs drawn yesterday and most of them jumped. They called me and talked to me about my low potassium. My electrolytes are off, too. (No news on Terri’s MELD score.)

We’ve moved up my appointment with the pulmonologist, and I’m going to see him this week. That’s a good thing under the circumstances.

I’m still watching and rooting for the Thunder, but I usually go to sleep before the games are over.

On the waiting list… Day 349.

Comments

Post a Comment

Popular posts from this blog

Heart transplant recipient celebrates graduation with donor’s mom

Image
A.J. Reyes, right, talks with Mary Knauer prior to a graduation ceremony for Samuel Merritt University nursing program students in Oakland, Calif. on Friday, May 26, 2017. Knauer's son was killed in a motorcycle crash in 2010 and Reyes received his heart in an organ transplant. (Kristopher Skinner/Bay Area News Group) At 25, AJ Reyes was suffering from congestive heart failure and running out of time. Unless the Vallejo resident got another organ to replace his damaged one, his doctors told him he would be dead within five years. Reyes went on the California Transplant Donor Network waiting list and in November of 2010, he got the call that he had been praying for. A strong, healthy heart had become available. But his joy was clouded by the knowledge that the news meant another family’s nightmare. Justin Olivera, a 40-year-old man from Willows, a small rural town in Northern California, had just been killed in a motorcycle accident. Olivera was an organ donor, and his heart...
Read more

The Kidney Crisis

Image
Hour Detroit Magazine | By Monica Mercer // Photographs by Josh Scott Myths about organ donation and transplantation are still contaminating the real issues behind a silent health problem Dr. Alan Koffron can conjure scene after scene from the medical TV genre where human kidneys have been integral to the plot: residents dropping them on the floor, crooked doctors profiting from organ trafficking, the wrong kidney placed in the wrong body. Kidney transplantation â€" the most commonly performed of all transplant procedures in the world â€" ranks high on the medical dramatics scale, Koffran says, but he’s not sure why. An organ transplantation surgeon with Beaumont Hospital in Royal Oak, Koffron has performed thousands of kidney transplants. He and the other medical professionals involved in the process across the country know how heavily regulated it is in the United States, with checks and balances so strong that rarely does a kidney transplant involve any- thing remotely a...
Read more

Hawthorne woman's liver donation saves cousin, the 'big sister' she never had

Image
North Jersey | Lindy Washburn CARMINE GALASSO/STAFF PHOTOGRAPHER Jennifer Carrino, left, and cousin Nina Walsh showing off their surgery scars. Nina donated a portion of her liver to her older cousin, likely saving her life. Over the last year, Jennifer Carrino had come back from the brink of death, survived internal bleeding and spent weeks in intensive care. Then came the hard part: asking her cousin for a part of her liver. In April, doctors told Jennifer that without a transplant she probably had a year to live. Jennifer, 37, was already on transplant waiting lists in two states, but it was going to take too long, they said. She needed to think about a living donor. Jennifer turned to her younger cousin, Nina Walsh, a slip of a woman with an outsized sense of generosity. She asked her to consider giving up part of her healthy liver. The procedure, pioneered 20 years ago, pushes the ethical boundaries of medicine because it goes against a basic tenet of medicine to “first do no ha...
Read more