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Showing posts from April, 2013

Presidential Proclamation -- National Donate Life Month, 2013

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The White House NATIONAL DONATE LIFE MONTH, 2013 - - - - - - - BY THE PRESIDENT OF THE UNITED STATES OF AMERICA A PROCLAMATION Today, more than 115,000 men, women, and children are on the waiting list for an organ transplant. To help them get the care they need, millions of Americans choose to be organ and tissue donors -- a decision that reflects not only profound generosity, but also our commitment to one another. During National Donate Life Month, we renew the call for organ and tissue donation. Most people can be donors, and the need is great. I encourage Americans of every background to learn the facts about organ and tissue donation, consider signing up for their State's registry, and talk to family and friends about their decision. Information and resources about how to get involved are available at www.OrganDonor.gov. Together, we can respond to the donor shortage that keeps thousands of patients from getting life-saving care. Let us mark this month by rededicating ourselve...

10 Year Old Saves Five Lives Through Organ Donation

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KCRG TV9 | Heather Hubbs IOWA CITY, Iowa-- An Eastern Iowa Family is speaking out in the wake of the tragic loss of their little boy in hopes of saving the lives of others. Ten year old Garret Brockway of Burlington died in February, three days after a tree in his families yard fell and hit him on the head. In the wake of their grief his parents made the selfless decision to donate Garrett's organs and tissues, saving the lives of others. When Garrett Brockway died, his organs saved the lives of 5 people. His corneas and tissues enhanced the lives of many more. His parents have found great comfort in that and are now encouraging others to register to give the gift of life. "He was very athletic, full of life, his two favorite loves in life were Kit-Kats and the St. Louis Cardinals," said Tiffani Brockway, Garrett's Mom. Though their 10 year son Garrett is gone, Bruce and Tiffani Brockway know he lives on in each of the people his organs helped saved. "It's be...

National Donate Life campaign features woman who died waiting for kidney

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WLS - ABC7 Chicago | Diane Pathieu April 1, 2013 (CHICAGO) (WLS) -- Vikki Tulcus was a longtime advocate for organ donation-- and then her fight got personal. "Before, my job depended on the organ donor program. Now, my life depends on it," Tulcus said in a 2012 TV spot for National Donate Life month. Tulcus, who worked side-by-side with Secretary of State Jesse White as the regional coordinator for the state's organ donation program, was diagnosed with a rare auto-immune disease that attacked her organs. She died in January while waiting for a new kidney. Now, her story is part of the National Donate Life Month 2013 campaign. Tulcus' fiance, Dan Lietz, wanted her memory to live on. So he took her place in Secretary White's office, leading the fight to educate people about organ donations. "I want her to live on and it will be her legacy," Lietz said. Much of Tulcus' organs weren't able to be transplanted due to her illness, but she was still abl...

Donate Life Concert - Transplant Choir with special guest Aled Jones - UK

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Sheffield City Hall Saturday, 13 Jul 2013 Start Time: 19:30 Doors Open: 18:30 Donate Life - Transplant Choir with special guest Aled Jones and the award winning Wessex Male Choir. The Donate Life Concert is a national celebration of the benefits of organ donation for National Transplant week and is organised by Transplant Sport. In the year that TS are bringing the Transplant Games to Sheffield, they are also bringing music . We are delighted to announce that Aled Jones will be our special guest at the concert which will bring together all of the charities and organisations involved in life saving transplantation in this music event. The concert will include the Transplant Choir made up of adults and children who are waiting for transplants, have had transplants or are from donor families. There will be other choirs and acts from the transplant community and the award winning Wessex Male Choir. This is the first concert of its kind and hopes to boost the health and well being of all in...

New approaches in treating complicated childhood polycystic kidney disease

Science Codex A collaborative team of physician-scientists at the Medical College of Wisconsin (MCW) and Children's Hospital of Wisconsin Research Institute has developed a new evidence-based, clinical algorithm to help physicians treat complex patients with autosomal recessive polycystic kidney disease (ARPKD). Their invited manuscript, written by Grzegorz Telega, M.D., associate professor of pediatrics (gastroenterology and hepatology) at MCW and program director of hepatology at Children's Hospital of Wisconsin; David Cronin, II, M.D., Ph.D., professor of surgery and member of the new Transplantation Institute; and Ellis D. Avner, M.D. professor of pediatrics (nephrology) and physiology at MCW, and director of the Multidisciplinary Childhood PKD Program (MCPP) at Children's Hospital of Wisconsin Research Institute, appears in the April 17 edition of Pediatric Transplantation http://onlinelibrary.wiley.com/doi/10.1111/petr.12076/full . ARPKD is a rare genetic disorder tha...

Nina Dobrev Shares Exciting News About Sick ‘TVD’ Fan Kayla Baker

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Hollywood Life | Bonnie Fuller Great news! Nina announced that Kayla Baker, a ‘TVD’ fan who suffers from Pulmonary Fibrosis, has received a successful lung transplant! The Vampire Diaries stars, Nina Dobrev and Ian Somerhalder , first brought 14-year-old Kayla Baker‘s story to attention when they granted her wish by sending her a special message from the TVD set ! They surprised Kayla again, when they visited her in the hospital in Toronto on April 3! ‘Vampire Diaries’ Fan Gets Lung Transplant On April 5, Nina excitedly tweeted, “Sending congratulations to @kayla_0507 and her family. We all secreted this. Her life has been saved. I’m smiling ear to ear.” Along with the tweet, Nina shared a screenshot of a post on Kayla’s Facebook page that read, “I can not tell you how grateful we are to have a hero for Kayla baker this morning… Thank you to the family that made the choice to have their loved one be the hero… At 130am this morning Kayla was taken to the OR...

REGISTER AND BE A LIFESAVER - UK

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Donna's Dream Let me tell you about a chap i've been speaking to just lately about organ donation education. His name is Keith Sudbury and his son Adrian campaigned exhaustively for more organ donors and for organ donor education. Adrian had Leukaemia and received a bone marrow transplant but sadly lost his battle in 2008. Adrian's dad Keith went on to start Register & Be a Lifesaver (R&Be) and not long after began delivering presentations about blood, bone marrow and organ donation in schools just as Adrian had wished. R&BE is now funded and run by Anthony Nolan , the worlds first stem cell donation register and the UK’s first dedicated cord blood bank, in partnership with the NHSBT . Before I go any further i'll explain why i'm going into detail. For a while now i've been looking for ways to get more schools to teach our young adults about organ donation, and blood and bone marrow, and so far have been hitting my head against a brick wall with r...

Mercy Medical Center shares organ donation success stories

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KTIV News, Sioux City, IA | By Jacob Peklo A new flag is hoisted at Mercy Medical Center encouraging others to Donate Life as part of national organ donor month. SIOUX CITY, Iowa (KTIV) - After a family members dies, the decision to donate their organs can be one of the most difficult a family can make. April is "donate life" month. On Monday, Mercy Medical Center brought together several families affected by organ donation, to share their stories. They also raised a flag along the street, which encourages people to "donate life." Many become organ donors after they die, but Curt Green says he's lucky to have a donor, who's still alive. "If I ask you for five bucks, it's a pretty good chance that you're going to get it back, but if I ask you for an organ, you're not going to get it back, and there's just everything that could go wrong, you know. So, he came to me and I was speechless," said Curt Green, a kidney recipient. Paul and A...

Bellows Falls mother plans benefit 'Walk for Cody'

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Brattleboro Reformer | By DOMENIC POLI  Photo: Cody Morin, age 17, needs a liver transplant. His mother, Darla Fletcher, has organ­ized a Walk for Cody on April 15 to raise funds to defray medical costs. BELLOWS FALLS -- Darla Fletcher's son, Cody Morin, had his first liver surgery when he was just 12 days old. Morin, now 17, appeared to be out of danger after that, until last year when something didn't seem quite right with him. "Somebody said to me, ‘You need to look at Cody's eyes,'" Fletcher recalled. "They were all yellow." Morin's liver problems had returned, leaving him jaundiced. He was born without bile ducts in his liver and since last year has undergone 13 procedures (two of them major ones) to clear a pathway for bile to drain. But Morin's doctors say this just buys him some time and he needs a liver transplant to survive. But the price tag that comes with that surgery, and the constant travel to Dartmouth-Hitchcock Medical Cen...

The Ethics of Asking In Organ Donation

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Bioethics.net Original Commentary by BEI Young Professionals member Olivette Burton, MBe, MSW. Last Sunday my friend collapsed on a soccer field and was rushed to the hospital. In an instant, a lifelong athlete with a fantastic physique and a beautiful spirit was gone, betrayed by a heart that malfunctioned and abruptly failed. Cause of death…heart attack…25 years old. As is the case in situations like these, especially when the dead person is young and otherwise healthy, the possibility of obtaining organs becomes part of the clinical process. Thus, while in the hospital and at the height of grief, staff approached the family about the possibility of donating his organs. Being devout Muslims of West African descent, they declined on the basis of their faith, which requires that the body be returned whole in death. That should have been the end of the matter. However, according to the family and friends who were present, the staff aggressively altered their tone, in person and duri...

Organ donor’s family comforts others with blanket ministry, encourages the sharing of life

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Lake Houston Observer | Stefanie Thomas Photo: Shannon Lenox, of Huffman, remembers her son Roy Heck as a popular young man who loved life. To honor him and the life-saving gift he made to others through organ donation, she started a blanket ministry to lend comfort to others. The following is part one of a three-part series the Observer will feature throughout April in recognition of National Donate Life Month in support of the 11,438 patients currently signed up with organ donation registries in Texas. Part two of the series will appear in next week, featuring an interview with the recipient of Roy Heck’s heart and telling the story of the first meeting between the donor and recipient families. Perhaps it was coincidence, or maybe providence, that mother and son engaged in a seemingly random discussion about organ donation one day in March 2010 while riding home in the car together. Shannon Lenox cannot remember how the subject came up, but her son told her that â€" like his m...

Racing for Donation 8K Run/Walk

Check-in is at 7 a.m. Proceeds benefit the Mississippi Organ Recovery Agency. The Celebration of Life PIcnic follows the race; Chris Gill and the Soleshakers perform. When: Saturday, April 27, 8 a.m. Where: Liberty Road, Flowood Cost: $20 through April 13, $25 after, $15 team members (groups of two to 10) Contact Name: Lylla Joe Contact E-mail: ljoe@msora.org Categories: All, Charity Fundraisers, outdoors, Sports, Rock, Music Listings Presented by Community Bank, Racing for Donation 8k Run / Walk will be held on Saturday, April 27th. The course is a flat, fast one which begins on Liberty Road in Flowood. Runners and walkers will utilize the new paved walking path which offers participants safety during the race. Parking will be available at the Mississippi Organ Recovery Agency parking lot located at 4400 Lakeland Drive (formerly known as Wilson Mazda). Registration: Pre-register online by clicking here or by mail, postmarked no later than Saturday, April 13, 2013. Race day registratio...

Healthy Kids: Talking about organ donation

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St Louis Post - Dispatch | Dr. Stuart Sweet Stuart Sweet, MD, PhD, St. Louis Childrens Hospital As a pediatrician who cares for children who need and have had lung transplants, one important conversation I hope happens at least once at every family’s dinner table centers on the extremely giving and selfless decision to donate organs. I’m privileged to work with an extraordinary group of physicians, surgeons, nurses and other health-care professionals in an institution that is very supportive of pediatric organ transplantation. At St. Louis Children’s Hospital, we work closely with Mid-America Transplant, the organ procurement organization serving the St. Louis metro area. Mid-America Transplant is one of the most innovative in the country, even operating a driver’s license fee office in the St. Louis area to ensure its presence in a setting where citizens indicate a preference for organ donation on their licenses. But our work remains dependent on the heroic acts of others â€...

Transplant recipient has organ donation education at heart

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Lake Houston Observer | Stefanie Thomas Photo: Shannon Lenox and Michael Nall have become a powerful team advocating organ donation by giving educational speeches around the Houston area. This is the second part of a three-part series of articles in recognition of National Donate Life Month and in support of the 11,438 patients currently signed up with organ donation registries in Texas. In part one of the series last week, the Observer spoke with the family of Roy Heck, who died in a car accident in April 2010 and donated his organs to four Houston-area recipients. Today, the Observer shares the perspective of Michael Nall, who received Roy’s heart. Next week, the Observer hopes to provide insights from an organ procurement organization and dispel some myths about organ donation. Michael Nall spent weeks in a hospital bed, listening to helicopters come and go, each time hoping this would be the chopper that would bring him his life-saving gift: a new heart. There was a time when Nal...

THE ORGAN TRANSPLANT WAITING LIST

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Donate Life California Nationally, there are more than 114,000 people waiting for much-needed organs. As these patients and their families hold out hope for their second chance at life, the United Network for Organ Sharing (UNOS) manages the list of those individuals across the country, ensuring that the available gifts go to those who are best matched. This system developed out of the National Organ Transplant Act in 1984, which established the Organ Procurement and Transplant Network (OPTN), a national organ sharing system to guarantee, among other things, fairness in the allocation of organs for transplant. UNOS maintains a database of all patients waiting for various organ transplants. How to get on the National Transplant Waiting List: 1. Get a Referral: You must get a referral from your physician in order to be evaluated by a transplant program as a potential transplant candidate. 2. Gather Information: Order a free copy of Partnering with Your Transplant Team. This handbook i...

Donate Life California will be at the Catalina Health Fair - April 18, 2013

Organ & Tissue Donation Blog For National Donate Life Month, Donate Life California will be at the Catalina Health Fair this coming Thursday, April 18, 2013 providing information on the California Donor Registry and signing up organ, eye and tissue donors. Please stop by and learn more on how you can save the lives of up to 8 people through donation.